Thanks for your explanation of the condition. People who don’t experience neuropathy may be clueless, but willing to learn about it.
Our bodily sensations shape us, and our relationship with the outside world. We all instinctively understand why someone will not take a stroll when it’s cold outside because that’s a shared experience. Our inside sensations are as real to us as the outside world.
Others may lack the physical understanding of something they didn’t lived, but can grasp the feelings on an intellectual level.
Your article reminds me of a writer who famously let his fingernails grow so long they curled. When asked about it, he responded the tip of his fingers hurt when he touched something, and his fingernails protected him. It is now speculated he suffered from neuropathy.
This definitely helps. Every time I read one of these first hand accounts, I feel like I understand what you're going through a little better than before, although I'm sure there is still a wide gulf between description and experience.
Hope you're feeling better this week! Neuropathy sounds like a pretty big inhibitor when it flares up like this.
I appreciate you sharing your health with us all. I have a close relative who has been through a lot with his health for quite a few years now. From what you have written, and from what I have seen him go through, it sounds like the two of you have had some parralle experiences concerning your health. I have the deepest respect for you both. Just the frustration alone seems like it would be overwhelming., not to mention feeling sick and hurting .
I myself have had some exhausting health issues over the last several weeks. The fatigue I feel has prevented me from doing many things. So I especially appreciate it when you are able to let us all know how you are doing. Thank you!
Thank you. I had a friend who once joked that all health stories are essentially the same. We got sick and struggled. Then got sone treatment and it sucked. It helped give some hope but then it got dark. We may have improved some or we didn't. That's it. Pretty boring after a while. I have to agree in that it is fairly boring if you look at people in those two dimensional terms. it's not the illness that defines our stories. It's who we are at our cores that tell others who we are.
It is who we are at our cores. Your comment brought back to mind of a time when I was at one of the lowest times in my life. I certainly felt far from being an inspiration to or for anyone. Yet, it was then that friends and family told me that I had been their inspiration.
Man, pins and needles in the eyes absolutely doesn't sound like fun. That sucks, and I hope it's not too frequent of an occurrence for you.
Also, who comes up with names of different pills? Gabapentin and Pregabalin sound like the names of two mid-tier henchmen in the Turkish knockoff of "Teenage Mutant Ninja Turtles." In Turkey, they're called "Adolescent Anomalous Fighting Kaplumbağas."
Thanks, fortunately the sensation is more around the eyes than in the eyes but it’s not fun. It used to be constant for me but I’ve learned to reduce the intensity of it with neck stretches and compress masks. But it flared up big time this past week and so I didn’t really spend much time looking at anything internets. Those two drugs are related. Pregabalin is sort of (but not exactly) like the junior version of Gabapentin. But I don’t think you can convert it to anything else like an episode of Breaking Bad.
One thing that is clear from most of your posts is that people can eventually get used to dealing with pretty much anything, up to and including "eye needles."
Thanks for writing about it in a self-aware, reflective way.
So we could have had a drug that combines the two called Pregabapentin? This rabbit hole gets deeper and deeper!
Peripheral Neuropathy can also develop as a post-infection neurological complication. In many cases, it doesn’t come and go but is present 24/7 and can progress from mild to severe as time passes. It can start in the extremities and then spread throughout the body. For some individuals, neuropathy also affects their faces, with numbing around their cheeks and lips. If someone has never heard of this, they may be inclined to dismiss it as hypochondriacal. Please don’t. These people have been evaluated by neurologists who have confirmed it with objective tests. They may not share it with others because of the disbelief that they encounter.
Thanks for your explanation of the condition. People who don’t experience neuropathy may be clueless, but willing to learn about it.
Our bodily sensations shape us, and our relationship with the outside world. We all instinctively understand why someone will not take a stroll when it’s cold outside because that’s a shared experience. Our inside sensations are as real to us as the outside world.
Others may lack the physical understanding of something they didn’t lived, but can grasp the feelings on an intellectual level.
Your article reminds me of a writer who famously let his fingernails grow so long they curled. When asked about it, he responded the tip of his fingers hurt when he touched something, and his fingernails protected him. It is now speculated he suffered from neuropathy.
Take care.
This definitely helps. Every time I read one of these first hand accounts, I feel like I understand what you're going through a little better than before, although I'm sure there is still a wide gulf between description and experience.
Hope you're feeling better this week! Neuropathy sounds like a pretty big inhibitor when it flares up like this.
I seem to have mostly rebounded yesterday and today. I didn't wake up with a headache, a fever, and cold sweats so that's a plus!
I mean, it's a plus if you're not into those things, I guess.
I appreciate you sharing your health with us all. I have a close relative who has been through a lot with his health for quite a few years now. From what you have written, and from what I have seen him go through, it sounds like the two of you have had some parralle experiences concerning your health. I have the deepest respect for you both. Just the frustration alone seems like it would be overwhelming., not to mention feeling sick and hurting .
I myself have had some exhausting health issues over the last several weeks. The fatigue I feel has prevented me from doing many things. So I especially appreciate it when you are able to let us all know how you are doing. Thank you!
Thank you. I had a friend who once joked that all health stories are essentially the same. We got sick and struggled. Then got sone treatment and it sucked. It helped give some hope but then it got dark. We may have improved some or we didn't. That's it. Pretty boring after a while. I have to agree in that it is fairly boring if you look at people in those two dimensional terms. it's not the illness that defines our stories. It's who we are at our cores that tell others who we are.
It is who we are at our cores. Your comment brought back to mind of a time when I was at one of the lowest times in my life. I certainly felt far from being an inspiration to or for anyone. Yet, it was then that friends and family told me that I had been their inspiration.
We are our actions and reactions. We may feel terrible but if we keep moving forward, then we are winning. Even if it doesn’t feel like it.
Man, pins and needles in the eyes absolutely doesn't sound like fun. That sucks, and I hope it's not too frequent of an occurrence for you.
Also, who comes up with names of different pills? Gabapentin and Pregabalin sound like the names of two mid-tier henchmen in the Turkish knockoff of "Teenage Mutant Ninja Turtles." In Turkey, they're called "Adolescent Anomalous Fighting Kaplumbağas."
Thanks, fortunately the sensation is more around the eyes than in the eyes but it’s not fun. It used to be constant for me but I’ve learned to reduce the intensity of it with neck stretches and compress masks. But it flared up big time this past week and so I didn’t really spend much time looking at anything internets. Those two drugs are related. Pregabalin is sort of (but not exactly) like the junior version of Gabapentin. But I don’t think you can convert it to anything else like an episode of Breaking Bad.
One thing that is clear from most of your posts is that people can eventually get used to dealing with pretty much anything, up to and including "eye needles."
Thanks for writing about it in a self-aware, reflective way.
So we could have had a drug that combines the two called Pregabapentin? This rabbit hole gets deeper and deeper!
Drug makers aren't that creative so I think it's only a matter of time before pregabapentin is a real thing! Oh the glory!
And yeah, we can get used to anything. Pain, especially, is all relative.
Peripheral Neuropathy can also develop as a post-infection neurological complication. In many cases, it doesn’t come and go but is present 24/7 and can progress from mild to severe as time passes. It can start in the extremities and then spread throughout the body. For some individuals, neuropathy also affects their faces, with numbing around their cheeks and lips. If someone has never heard of this, they may be inclined to dismiss it as hypochondriacal. Please don’t. These people have been evaluated by neurologists who have confirmed it with objective tests. They may not share it with others because of the disbelief that they encounter.